Sickle Cell Resources
Understanding sickle cell disease is the first step to preventing it and supporting those who live with it. Here's what everyone should know.
What is sickle cell disease?
Sickle cell disease (SCD) is an inherited condition that affects the red blood cells. Instead of being round and flexible, the cells become stiff and shaped like a crescent, or “sickle.” These cells can block blood flow, causing episodes of severe pain (crises), anemia, infections, and organ damage over time. SCD is one of the most common genetic disorders in Nigeria, which is exactly why awareness, early testing, and knowing your genotype matter so much.
Know your genotype
Your genotype is your inherited haemoglobin type. Knowing it, and your partner's, is the single most important step in preventing sickle cell disease.
No sickle cell gene. Considered a safe match with any genotype.
Healthy carrier. Two AS partners risk having an SS child.
Less common carrier trait. Genetic counseling is advised.
Lives with sickle cell disease and needs ongoing care.
A form of sickle cell disease; symptoms can vary widely.
Always confirm your genotype with a proper laboratory test. Genetic counseling is recommended before marriage or planning a family.
Living well with sickle cell
Day-to-day habits that help warriors stay healthy and reduce the frequency of crises.
Stay hydrated
Drinking plenty of water helps prevent the dehydration that can trigger a crisis.
Keep warm
Avoid cold environments and sudden temperature changes, which can bring on pain episodes.
Rest & avoid overexertion
Balance activity with rest. Listen to your body and avoid extreme physical strain.
Routine medical care
Regular check-ups, prescribed medication, and folic acid support long-term health.
Frequently asked questions
What is sickle cell disease?
An inherited blood disorder where red blood cells become rigid and crescent-shaped, restricting blood flow and causing pain, anemia, and other complications.
Why should I know my genotype?
Your genotype determines whether you carry the sickle cell gene. Knowing it, and your partner's, helps you make informed decisions and prevent passing the disease on.
How is it inherited?
A child inherits one gene from each parent. Two carriers (AS) have a 1-in-4 chance of having a child with sickle cell disease (SS) with each pregnancy.
Where can I get tested?
We offer free genotype and sickle cell screening at our AKYS community campaigns. Reach out and we'll help you find the nearest testing opportunity.
Ready to know your status?
Get in touch to find free testing near you, or support our mission so we can reach more communities.
Reach us any time at info.kaofoundation@gmail.com